IRELAND
7 September 2015 - Dublin
Organized by Irish Genetic and Rare Disorders Organisation (GRDO)
Site

PORTUGAL
End of February - Lisbon
Organized by Portuguese Alliance of Rare Disease Patient Organisations (APADR)
Site

DENMARK
23 January 2015 - Copenhagen
Organized by Rare Disorders Denmark (RDD)
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SPAIN
November 2014 - Madrid
Organized by FEDER, Spanish Alliance for Rare Diseases
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UNITED KINGDOM
24 June 2014 - London
Organized by Rare Disease UK
Site

BELGIUM
28 February 2014 - Brussels
Organized by Belgian Alliance for Rare Diseases (RaDiOrg)
Site

CROATIA
27-28 February 2014 - Zagreb
Organized by Croatian Alliance for Rare Diseases
Site

Italy
27-28 January 2014 - Rome
Organized by Italian Alliance for Rare Diseases (UNIAMO)
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FRANCE
13 January 2014 - Paris
Organized by Alliance Maladies Rares
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SERBIA
5-6 December 2013 - Belgrade
Organized by Serbian National Organisation for Rare Diseases (NORBS)
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LUXEMBOURG
19-20 November 2013 - Luxembourg
Organized by Luxembourg Alliance for Rare Diseases and Neuro Muscular Diseases (ALAN)
Site

NETHERLANDS
14-15 November 2013 - The Hague/ Rijswijk
Organized by Dutch Genetic Alliance (VSOP)
Site

CYPRUS
14 and 15 November 2013 - Nicosia
Organized by Cyprus Alliance for Rare Disorders (CARD)
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LITHUANIA
14 November 2013 - Vilnius, During Lithuanian EU Presidency
Organized by Organized by Lithuanian Society of Human Genetics
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HUNGARY
25-26 October 2013 - Budapest
Organized by Hungarian Federation of People with Rare and Congenital Diseases (HUFERDIS)
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POLAND
27-28 September 2013 - Warsaw
Organized by Polish National Forum for rare diseases therapy (ORPHAN)
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FINLAND
21 September 2013 - Helsinki
Organized by Rare Disease Alliance Finland (HARSO)
Site

ROMANIA
24-25 May 2013 - Bucharest
Organized by Romanian National Alliance for Rare Diseases (RONARD)
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GEORGIA
17 April 2013 - Tbilissi
Organized by GeRad, Georgian Foundation for Genetic and Rare Diseases
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UKRAINE
27 March 2013 - Kiev
Organized by CSMA; Kharkiv charitable foundation children with spinal muscular atroph
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RUSSIA
28 February 2013 - Moscow
Organized by National Association of Organization of Patients with Rare Diseases (GENETICS«Genetics») and Russian Patients Union Rare Disease Working Group
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SLOVAKIA
28 February 2013 - Bratislava
Organized by Slovak Alliance of Rare Diseases (SAZCH)
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GREECE
1 December 2012 - Athens
Organized by Greek Alliance for RD (PESPA)
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SWEDEN
26 November 2012 - Stockolm
Organized by Rare Disease Sweden
Site