The Survey

The survey analyzed strengths and weaknesses in developing National Plans and Strategies (NP/NS) on Rare Diseases (RD). In order to prepare a background discussion of the Inception Workshop.
The questionnaire was filled in by July 10, 2012 by the stakeholders for developing NP/NS on :

  • 27 Member State policy-makers identified by the project and confirmed by EUCERD as contacts points for developing NP/NS
  • Norway and Croatia
  • Non EU collaborating partners: Armenia, Georgia, Russia







View the survey results



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