Debrief sessions
ACTIVITY
The €œDebrief Session€ is a specific activity post-National Conference (NC), with the following objectives:- To identify and collect needs, challenges and the most pressing issues emerged during the EUROPLAN National Conference (NC) in relation to the development of Rare Diseases National Plans and Strategies (NP/NS);
- To suggest dedicated solutions to national authorities.
The long-term objective is creating a €œhub€ within the EUROPLAN Coordinating Team for support and information for national authorities on NP/NS, based on the expertise built from the direct contacts with national authorities.
The €œDebrief Sessions€ will be held at the end of the EUROPLAN NCs, for approximately 1 hour or 1 hour, in each EU Member State where a EURORDIS will organize a NC, starting from February 2013.
A specific solution will be adopted to take information also from other NCs:
- in Sweden and Greece: it is too late to arrange EUROPLAN Workshop post-NCs for time and organizing reasons (see the list).
- in Russia, Ukraine, Georgia and Serbia (Non-EU Countries): there is not budget allocated for these NCs and the EUROPLAN Coordinating Team will not participate to them (see the list).
- Upon request from Serbia, the European Commission, authorised the three teams (ISS, EURORDIS and UNEW) to organise a DS also in that Country (nonEU MS), in occasion of their NC (December 2013).
A common form will be used to identify the MAIN NEEDS/GAPS for which the Country (MoH Representative) requires the EUROPLAN €œA€ technical support (starting from strengths and weaknesses looked during the NC).
See the steps to steps to organize a €œDebrief Session€.
PARTICIPANTS
The €œDebrief Sessions€ should be involve no more 6-7 persons:- 1/2 EUROPLAN Coordinating Team member/s (who participate/s to the NC);
- 1 EURORDIS Advisor;
- 1 EUCERD JA Coordination representative;
- 1/2 Ministry of Health (MoH) representative/s (and key persons involved in elaboration/implementation of NP, including contact person of EUROPLAN €œA€, identified in collaboration with EURORDIS and National Alliances)
FOLLOW-UP
The EUROPLAN Coordinating Team, according to identified needs and the existing resources - in collaboration with EURORDIS and the National Alliances and EJA Coordination -, will arrange for each Country a dedicated proposal in order to provide connections to experts in other Countries (with same solved problems) and existing €œguidance€ documents (e.g. EUCERD Reports, Recommendations, etc.) regarding identified needs. Specific instruments and methods (e.g. conference calls, Skype-calls, workshops) will be selected considering the individual cases.