Projects and Joint actions

EUCERD Joint Action WP5: RD Coding

ORPHANET

Documents

• Summary report of the workshop on Orpha codes in health information systems (18 /3/ 2014, Paris)
• Documents_ Workshop on cross referencing of terminologies (27-28 /9/ 2012, Paris)
• Rare diseases in the ICD-11 Beta Draft
• Information leaflet on how to use the OrphaCode: Making rare diseases visible in your health information system