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Registries
Courses and Workshops and Other events
4th International Summer School on RD and OD Registries
26/09/2016 - Rome
Organized by Italian National Centre for Rare Diseases, Istituto Superiore di Sanità
Site
RD-Connect BYOD (Bring Your Data) Workshop to Link Rare Disease Registries
29/09/2016 - Rome
Organized by Italian
Site
RD-CONNECT WORKSHOP DATA LINKAGE AND ONTOLOGIES
24-25 September 2015 - Rome, Italy
Organized by National Centre for Rare Diseases - Istituto Superiore di Sanità
Site
3rd INTERNATIONAL SUMMER SCHOOL ON RARE DISEASE AND ORPHAN DRUG REGISTRIES
21-23 September 2015 - Rome, Italy
Organized by National Centre for Rare Diseases - Istituto Superiore di Sanità
Site
III INTERNATIONAL EPIRARE WORKSHOP
Rare disease and orphan drug registries
24-25 November 2014 - Rome
Site
II INTERNATIONAL SUMMER SCHOOL
Rare diseases and orphan drug registries
15-19 September 2014 - Rome
Site
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EPIRARE
Site
EUCERD Joint Action WP 8: Registration
Site
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Joint Research Centre (JRC)
Site