The Project
EUROPLAN 2012-2015
EUROPLAN 2008-2011
EUROPLAN background
Partners
EUROPLAN 2012-2015
EUROPLAN 2008-2011
Events
Meetings
Workshops
Debrief sessions
National Conferences 2012-2015
National Conferences 2008-2011
Other events
Capacity Building
Activities
The Survey
National Plans
List
Map
Documents
Links
Events
Meetings
Workshops
29/09/2016, Rome
14/06/2016, Rome
15 September 2015, Luxembourg
28 -29 October 2014, Rome, Italy
8 May 2014, Berlin
25 March 2013, Rome
10-11 September 2012, Rome
Debrief Sessions
National Conferences 2012-2015
National Conferences 2008-2011
Other Events
Presentations
Inception Workshop on National Planning for Rare Diseases,
10-11 September 2012 - Rome
EUCERD Joint Action 2012 - 2015
- Stephen Lynn
European project for rare diseases national plans development
- Domenica Taruscio
EURORDIS’ activities for National Plans
- Valentina Bottarelli
State of the art for national plans for rare disease
- Edmund Jessop
Strengths and weaknesses in developing national plans
- Rita Ferrelli
Lessons learnt from successes and failures in developing national plans
- Rita Ferrelli
Recommendations for the Development of National Plans or Strategies for Rare Diseases
- Domenica Taruscio
Selecting indicators to evaluate the achievements of RD initiatives
- Manuel Posada
The delphi process for selecting indicators
- Rita Ferrelli
Definition of actions supporting National Plans for Rare Diseases
-