Specific objectives

  • Elaborate recommendations as “tools” to facilitate the development of a national plan or strategy for rare disease

    The EUROPLAN recommendations are a tool to guide step by step efforts to elaborate national plans or stratagies for rare diseases and include priority areas and actions of intervention. The aim is to make such inititives consistent with a common strategy at European level, facilitate the coherence of national initiatives with best practices identified and stimulate the exploitation of possible synergies.
  • Elaborate indicators for monitoring national plans/strategies

    Indicators are selected to monitor the implementatioin of national plans and strategies and to evaluate their impact.
    A common set of indicators will also contribute to ensure the comparability of data among Member States and the implementation status of the Council Recommendation on Rare Diseases in the EU countries.
  • Discuss the recommendations with stakeholders

  • Disseminate the recommendations