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Structure of the project


EUROPLAN 2008-2011 is coordinated by Dr. Domenica Taruscio – Director of the Italian National Centre for Rare Diseases (Italian National Institute of Health, Italy).

The Coordinator is supported by the Steering Committee (SC), one representative from each associated partner for scientific coordination, and by the Advisory Committee (AC), leading experts in the field of rare diseases for external independent evaluation.

EUROPLAN 2008-2011 involves stakeholders from 34 countries: ministries, authorities, health care professionals, researchers as well as patients, represented by EURORDIS (European Organisation for Rare Diseases).

The project is organized in 8 Work Packages (WPs).

View the 8 Work Packages details.