EUROPLAN 2008-2011 Coordinator

• Italy
• National Institute of Health, National Centre for Rare Diseases

ASSOCIATED PARTNERS

• Bulgaria
• Bulgarian Association for Promotion of Education and Science (BAPES) - Information Centre for Rare Diseases and Orphan
  
• 
  Estonia
• University of Tartu (UT) €“ Department of Paediatrics
• 
  Spain
• Instituto de Salud Carlos III (ISCIII) €“ Research Institute for Rare Diseases (IIER)
• Spain -Canary Fundacion de Investigacion y Salud (FUNCIS)
• 
  Italy
• Institute of Pharmacological Research Mario Negri (IRFMN) €“ Clinical Research Center for Rare Diseases
• 
  Netherlands
• The Netherlands Organisation for Health Research and Development (ZonMw) €“ Steering Committee on Orphan Drugs
• 
  Sweden
• Karolinska Institutet (KI) €“ Department of Women and Child Health
• 
  UK
• London Strategic Health Authority (NCG) €“ National Commissioning Group
• 
  France
• European Organisation for Rare Diseases (EURORDIS)
• 
  

COLLABORATING PARTNERS

• Belgium
• Human genetics Center
• 
  Czech Republic
• University Hospital of Motol
• Ministry of Health
• 
  Denmark
• The National Board of Health
• 
  Germany
• Federal Ministry of Health
• 
  Ireland
• The St. Joseph, Ballinabearna Ballinhassig, Co. Cork
• 
  Greece
• Hellenic Center for Rare Disease Control & Prevention (HCDPC)
• Division Pharmaceutical Studies and Research
• The Greek Alliance Of Rare Disease
• Autonomous University of Barcelona
• European Network for Rare and Congenital Anaemias (Enerca)
• Ministry of Health and Social Policy
• The Biomedical Network Research Centre for Rare Diseases (CIBERER)
• 
  France
• Ministry of Health and Sports
• 
  Italy
• Health Regional Agency - Friuli Venezia Giulia
• Epidemiology Unit, National Institute for the Study and Care of Tumors
• EUROCAT €“Tuscany Congenital Anomalies Registry, National Research Council
• Ministry of Health
• €œS. Giovanni Bosco€ Hospital Multidisciplinar Centre of Immunopathologic Research
• 
  Cyprus
• The Cyprus Institute of Neurology & Genetics €“ Clinical Genetics Department
• 
  Latvia
• Ministry of Health
• 
  Lithuania
• Ministry of Health
• 
  Luxembourg
• Ministry of Health and the Rare Disease Task Force
• 
  Hungary
• University Pcs, Faculty of Health Sciences, Institute of Applied Health Sciences
• 
  Malta
• Mater Dei Hospital, Department of Pathology Genetics Unit
• 
  Austria
• University Children's Hospital
• 
  Poland
• Ministry of Health
• Polish National Forum on the Treatment of Orphan Diseases €“ ORPHAN
• 
  Portugal
• Hospital Dona Estafania €“ Servicio Genetica medica
• 
  Romania
• Romanian Prader Willi Association
• 
  Slovenia
• Ministry of Health
• 
  Slovak Republic
• University Children's Hospital, Kosice
• 
  Finland
• The Family Federation of Finland - Department of Medical Genetics
• 
  Sweden
• Medical Products Agency
• National Board of Health and Welfare €“ Health Care and medical Service Department
• 
  Croatia
• Children s University Hospital Zagreb
• 
  Turkey
• Department of Medical Biology, Hacettepe University,Faculty of Medicine, Ihsan Dogramaci Children's Hospital, Sihhiye
• 
  Canada
• Office of legislative and regulatory modernisation Policy,planning and international affairs directorate Health products and Flood Branch
• 
  Armenia
• €œNeurohereditary Diseases€ Charity AssociationRussian Federation - National Association of Organizations of Patients with Rare Diseases €œGenetics€
• 
  Georgia
• Georgian Foundation for Genetic and Rare Diseases
• 
  US
• Office for Rare Diseases, National Institute of Health
•