Sofia - 2010, May 28-29-30
organized by
NAPRD National Alliance of People with RD

Final Report

Dubrovnik - 2010, September 17-19
organized by
Croatian Society for Rare Diseases
DEBRA - Croatian Epidermolysis Bullosa Association
Cancer Patient Association „Za novi dan“
Croatian Cystic Fibrosis Association
Association of Persons with Prader-Willi Syndrome Croatia

Final Report

Copenhagen - 2010,November 19
organized by
Rare Disorders Denmark (RDD)
www.raredisorders.dk

Final Report

Paris - 2010,September 30
organized by
FRENCH RARE DISEASES ALLIANCE (AMR)

Final Report

Berlin - 2010,October 13-14

organized by
ALLIANZ CHRONISCHER SELTENER ERKRANKUNGEN (ACHSE)

Final Report

ens - 2010,November 26-27
organized by
Greek Alliance for RD (PESPA)
www.pespa.gr

Final Report

Budapest - 2010,October 15-16
organized by
RARE DISEASE HUNGARY (HUFERDIS)
www.rirosz.hu

Final Report

Dublin - 2011,January 20
organized by
GENETIC AND RARE DISORDERS ORGANISATION (GRDO)

Final Report

Florence - 2010,November 11-12-13
organized by
FEDERAZIONE ITALIANA MALATTIE RARE (UNIAMO)
Final Report

The Hague - 2010,November 19
organized by
Dutch Genetic Alliance (VSOP)
Final Report

Krakow - 2010,October 22
organized by
Polish Cystic Fibrosis Foundation (MATIO)
Final Report

organized by
Federación Española de Enfermedades RaraS (FEDER)

Final Report

organized by
Federación Española de Enfermedades Raras (FEDER)
www.enfermedades-raras.org

Manchester - 2010,November 16
organized by
Genetic Interrest Group - Rare Diseaseuk

Final Report

Rare Disease Sweden (SÄLLSYNTA DIAGNOSER)

Final Report