Courses and Workshops and Other events

II INTERNATIONAL SUMMER SCHOOL
Rare diseases and orphan drug registries
September 15-19, 2014, Rome
Presentations Now Available Online

III INTERNATIONAL EPIRARE WORKSHOP
Rare disease and orphan drug registries
November 24-25, 2014 , Rome

Projects and Joint actions

EPIRARE

EUCERD Joint Action WP 8: Registration

Organizations

Joint Research Centre (JRC)

Documents

• EUCERD RD Registries
• Documents_ Workshop on registries for rare diseases and the European registry platform (22-23 /4/ 2013, Paris)
• Documents_ Workshop on rare diseases registration (13/11/ 2012, Luxembourg)