EUROPLAN - European Project for Rare Diseases National Plans Development

Events

Presentations

Inception Workshop on National Planning for Rare Diseases,
10-11 September 2012 - Rome

EUCERD Joint Action 2012 - 2015 - Stephen Lynn

European project for rare diseases national plans development - Domenica Taruscio

EURORDIS’ activities for National Plans - Valentina Bottarelli

State of the art for national plans for rare disease - Edmund Jessop

Strengths and weaknesses in developing national plans - Rita Ferrelli

Lessons learnt from successes and failures in developing national plans - Rita Ferrelli

Recommendations for the Development of National Plans or Strategies for Rare Diseases - Domenica Taruscio

Selecting indicators to evaluate the achievements of RD initiatives - Manuel Posada

The delphi process for selecting indicators - Rita Ferrelli

Definition of actions supporting National Plans for Rare Diseases -