News

  • 2nd Edition of the International Workshop "Rare Disease and Orphan Drug Registries"
    21-22 October 2013
    National Institute of Health, Rome - Italy
    [visit the website]
  • International Summer School "Clinical practice guidelines on rare diseases"
    8-12 July 2013
    National Institute of Health, Rome - Italy
    New deadline for application submission: 8 May 2013
    [visit the website]
  • International Summer School "Rare Disease and orphan drug registries"
    16-20 September 2013
    National Institute of Health, Rome - Italy
    Deadline for application submission: 30 June 2013
    [visit the website]
  • Primary prevention of congenital anomalies
    Recommendations on policies to be considered for the primary prevention of congenital anomalies in National Plans and Strategies on Rare Diseases
    [see the document]