u EUROPLAN - European Project for Rare Diseases National Plans Development


  • Adopted the first Ukrainian law for Orphan Diseases
    15 April 2014

  • Published the paper "European Recommendations for Primary Prevention of Congenital Anomalies"
    April 2014

  • European Commission adopted two Decisions on the establishment of European Reference Networks (ERNs)
    March 2014
    [document] - [website]

  • Belgium has approved the National Plan for Rare Diseases
    February 2014

  • Rare Diseases. How Europe is meeting the challenges
    November 22, 2013
    RARE-Bestpractices is in a report of the European Commission of selected rare disease EU funded research projects