News

  • EUROPLAN 2012-2015 INFORMAL MEETING
    May 23, 2012
    Bruxelles, Belgium
    Invitation

  • Second EPIRARE Meeting
    First Announcement
    May 23, 2012
    Bruxelles, Belgium
    Site

  • RARE DISEASE AND ORPHAN DRUG REGISTRIES
    International Workshop

    October 8-9, 2012
    ISS - Rome, Italy
    Site - Call for abstracts
    Abstract submission form

EUROPLAN 2012-2015
a three-year project, embedded in the EUCERD Joint Action as Work Package 4, it is coordinated by the Italian National Institute of Health - Italian National Centre for Rare Diseases.
Its main goal is to establish an international and interactive network of stakeholders (mainly policy makers) to speed up the elaboration and the implementation of Rare Diseases National Plans/Strategies, trough scientific and technical assistance, Workshops and the active participation of patients Groups (EURORDIS and National Alliances). [read more]

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