Indicators for National Plans

The development and use of indicators is an integral part of planning and designing health and social services for Rare Diseases

Debrief Sessions: Spain

Madrid, 20-21 November 2014

The “Debrief Session” is a specific activity post-National Conference in order to identify and collect needs, challenges and the most pressing issues emerged during the EUROPLAN National Conference and to suggest dedicated solutions to national authorities


Any help?

A instrument for who need support in the process of national planning

The EUROPLAN team will be glad to provide you with references and resources that may be useful in this activity.



    • Article: State of rare disease management in Southeast Asia


      An article published in the Orphanet Journal of RD consists of information from six Southeast Asian countries on management of rare diseases based on the WHO’s framework for action in strengthening health systems. See the full article

    • FDA providing $2 million in new grants for natural history studies in rare diseases

      29/09/2016 - U.S.

      The aim is to collect data on how specific RD progress in individuals over time so that knowledge can inform and support product development and approval. Grant applications: Oct. 14, 2016. For further information visit the website

    • EUROPLAN on twitter


      Follow us : @EUROPLANproject